One thing that has cropped up during my search for a wider realm of support during my battle with MS is the number of people who turn to religion as a support structure to help them through their own personal battles. While I have no problem with whatever one needs to help them through fighting a chronic disease like MS. A problem arises when there is an expectation that everyone else has to offer up support only in that way, and no other.
My treatment by others set aside as a needless digression, how do I fight a disease so far outside of my control when I have no belief in the supernatural?
I look to those things in my life worth living for, worth fighting the MonSter for. My wife and children are at the top of the list, with my parents and friends close behind. All very real, all very here. I place myself third, along with my writing and programming goals. These are enough to keep me breathing, keep me fighting, keep me pushing myself to my feet when I am on the floor and struggling, keep me taking my meds and doing my injections.
My pain may be great, but it is just pain. My tired and sore muscles are still mine, even if they don’t listen well.
I don’t need to look up to the sky for inspiration. I don’t need a god to take my burden; I can carry it with the help from those I love. I don’t need hollow platitudes or the empty promises of prayer to get me through the day.
Do not pity me for making it through without relying on a god. Realize I am making it through, and wonder how a simple human could do something like that.
We have seen the passing of one of my personal heroes this week, Leonard Nimoy. To honor him, I watched the first five Star Trek movies. The funeral scene in Wrath of Khan made me cry, as did several of the other scenes related to death. I told my oldest that he was one of my heroes, and I realized he was. His views on life, both in and out of character, helped me through some dark times in my life. I mourn his passing.
I have already seen people speaking of him in Heaven, and some dismissing him as an atheist. From all of the information I can gather, he was a lifelong Jew. So, yes, he may be in Heaven, but he is not hanging out with Saint Peter. Sorry to dash your hopes of playing pinochle with him. To be honest, I don’t know if that was a game he liked or not. I could see him enjoying many different types of games. Maybe that is my own projection.
I’m sorry that it has been a long time since my last update. My heath has been an issue; I got a pretty severe head cold, and, with Multiple Sclerosis, it makes everything more complex. When the fever one is running makes it hard to move or think straight, blogging sometimes takes a hit. Thankfully, I survived it, although our finances have taken a hit, with my lovely wife having also been sick and having to take some time off. So, to cover some of my ongoing medical expenses, I have had to resort to a Gofundme fundraiser. Links are to the right.
Yesterday, I woke up and my right hand had gone all pins and needles. It is a new symptom, a departure from the slow decline of my left side, and something quite worrisome. It will probably take me some time to get used to the way my right hand feels now. My typing has slowed, and I am considering teaching myself touch typing with the new condition to improve my speed. Coding will be difficult, but I have too many projects to be slowed down by something silly like a disability.